melanoma wife: We will praise you in our storm......

LEARN THE ABCDEF'S OF MELANOMA!!! EARLY DETECTION IS THE KEY!

Monday, November 30, 2009

We will praise you in our storm......

So today we heard some good news and some not so good news. Good news: there are no new mets in Marcus' liver, spleen, pancreas, etc...THANK YOU JESUS!!! Not so good news: the tumors in his lungs have grown and do not appear to be responding to IL-2.

So, Dr. Kim has suggested he begin a chemo cocktail called CVD (Cisplatin, Vinblastine, & Dacarbazine)......he can possibly do this locally with Dr. Lavalais (Marcus loves her and hopes she will take this on) if she feels comfortable with it. If not, we will go to MD Anderson to get this treatment. He will go 4 days-all outpatient, have treatments for about 4 hrs each day, then get 17 day break, repeat 4 days, then 17 day break, then scan again. In the meantime, they are going to try again for BRAF testing on the cells from his biopsy in Sept..and see if they can test the cells from the fluid they removed from his lung over the weekend.

Some of you may be disappointed and feel your prayers are not working-please do not feel this way. We know that God is in control and we are waiting patiently for Him to heal Marcus-and we will continue to "praise Him in this storm"-our faith is not shaken-and we pray neither is yours. Marcus and I have felt drawn to Jesus, more than ever and we are ready to battle! So the devil better get ready-we are not letting this slow us down!

If Dr. Lavalais is on board, Marcus could start this treatment by wed or thurs-so we need all prayers to continue-this treatment is 3 different chemos all at once and it will be rough...but Marcus is ready-willing to do whatever God offers him to fight this monster called Melanoma.

So please watch/listen to the video above and do not let the devil shake your faith-Marcus isn't, and neither am I.....So stand strong with us and PRAY, PRAY, PRAY!!!!!

We love you all so very much and thank you for all the text messages, emails and phone calls to check on us!!!

4 comments:

Anonymous said...: I am so proud of both of you! You, your trials and strong faith have touched so many people. Thank you for the opportunity to grow in relationship in Christ through praying for you all.; November 30, 2009 at 9:33 PM
Julie said...: I can't imagine the amount of faith it takes to keep your positive attitude. When most people would be focusing on the negative, you are staying strong and focusing on the positive. There is almost always a positive, and by golly, you have found it. I will continue to pray for you and Marcus, et al. I love you so much!; December 1, 2009 at 8:53 PM
Stephanie said...: Your words and positive enthusiasm are what Marcus needs now and there's no shortage there!! All he needs to do is look at you and draw strength from you! Stay strong! Wishing you all the best from Washington!; December 1, 2009 at 11:51 PM
Shawn Steidinger said...: I've already seen miracles come with IL-2, and have heard of others who've benefited from the chemo cocktail - I can't wait to hear Marcus' success story next! Keep the faith, keep praying ('cause I sure am!) and He will get you through!; December 2, 2009 at 5:04 PM

how it all began-the "mole" story

well, just for those that don't already know-here is how this journey began. it all started with a little mole that marcus had since birth, on his thumb. in early 2007, i noticed that it had started to change-it was bigger and part of it was black and part was brown-i really didn't know much about melanoma, but i remember the way it looked-it reminded me of the mole on my niece's foot that a dr. removed when she was small, because he said if they didn't remove it, most definitely it would turn cancerous when she went through puberty. ANYWAYS, so i began nagging sweet hubby to go get it looked at. of course, he kept saying, "it's no big deal, i have had this mole since i was born-it's fine". so life went on.

well, hubby works with his hands since he is a machinist, and he bumped the mole-it bled-it grew bigger. a few months later, he bumped it at work AGAIN-it bled-it grew bigger-and now it actually started to bother him. it was sensitive.

one day out of the blue he called me from work-and asked me to make an appt. for him to go to the dr. to get the mole removed. THANK GOD! so of course i got right on that phone and made him an appt. first call to his current primary care phys. was a joke-they couldn't see him for at least another week or so because they were only seeing flu patients on fridays (the only weekday hubby has off) and didn't feel his mole was anything to fret about! well, i sure thought it was and called my primary care phys.-she had no problem seeing him on friday like he wanted!

sure enough, once he saw her, she didn't like the looks of the mole and immediately sent him to a dermatologist. and only by God's hand guiding-did she decide to NOT wait 3-6 months for a dermatolgist in beaumont to get an opening-but she sent him to a dr. in mid-county-that she didn't even know-she had just received his business card in the mail the week before-and decided since he could work hubby in so quickly-that he was the ONE!!! THANK YOU GOD!!!!

well, the next week came-marcus went to the dermatologist-wanting to get that mole removed!! to his surprise-the dr. wanted to biopsy it-he didn't like the looks of it either. (do you see a pattern here? sweet wife was on to something !) he talked the med. asst. lady into cutting as much of the mole off as she could-and she did-we later found out that she removed all the cancer from the thumb with that biopsy! one week later, we were told that the biopsy showed malignant melanoma and they sent us straight to MD Anderson in Houston!!!! talk about scary!

the medical oncologist explained that the type of cancer he had was called superficial spreading melanoma-and it liked to spread to the lymph nodes-so he suggested a partial amputation of the thumb-to make sure he got all the cancer-and a sentinal node biopsy-to see which, if any lymph nodes had cancer- Marcus wanted to save his thumb-so that is what they did. the dr. removed the margin around what was left of the mole-and took a skin graft from the side of his stomach to rebuild the thumb. this all healed very well.

they did the sentinal node biopsy and found that there was one lymph node under his arm that had cancer-it ended up having 20 cells in it-so they suggested he remove all the lypmh nodes from under his arm. he did this and all the other nodes came back CANCER FREE!!!!!!!

now they also suggested he do 4 weeks of high dose interferon to kill any cells that may have gotten loose from that node-to prevent this monster from coming back. they also want him to do 11 months of the interferon shots-but we don't know how far he will go with those. all depends on how sick they make him-and if they are anything like the high dose-he may only go 2 weeks.**MARCUS COMPLETED 4 WEEKS OF HIGH DOSE INTERFERON AND DID THE SHOTS 3/WEEK FOR ABOUT 3 MONTHS BEFORE HE STOPPED**

we later discovered that once the cancer has spread to lymph nodes closest to the mole, it is considered stage III-no one ever really told us this-we had to learn on our own.***UPDATE-8-31-09 LUNG METS WERE DISCOVERED SO MARCUS WAS UPGRADED TO STAGE IV***
***AFTER IL-2 AND SEVERAL CHEMO COMBOS, MARCUS LOST HIS BATTLE 4-1-2010. MELANOMA SUCKS!!!***

this is a brief outline of the "mole" story-hope it was easy to follow-and hope it makes everyone think twice about their moles!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! PLEASE LEARN ABOUT MELANOMA-IT IS NOT "JUST" SKIN CANCER!!!!!

melanoma wife

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LEARN THE ABCDEF'S OF MELANOMA!!! EARLY DETECTION IS THE KEY!

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Monday, November 30, 2009

We will praise you in our storm......

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