Well, for those of you that don't follow me on facebook, I just wanted to let you all know how our Christmas ended up....not exactly how we planned, but we were together after all-and that is the most important part..
So Christmas morning I left the hospital around 7am to come to my in-laws house to wake the girls up...let them open their stockings and santa gifts...then we packed up their other gifts and headed to the hospital so they could open their presents with their Daddy. He had spiked a fever the night before and we didn't know what the dr would say once he came in for rounds....
Well, girls opened their presents and we had a nice visit with their Daddy-then the dr on call decided since he spiked another fever-and after 3 days in the hospital they still had no idea what the fever was casued from-all blood tests, urine tests, etc were negative for any infection-so this dr decided to order a serious list of tests, that marcus felt were completely unnecessary-we have felt from the very beginning that his fever had something to do with his denver cath..which we haven't been able to drain much fluid out of for a week now....but no one at bapt hosp bmt would even remove the dressing to look at the denver cath-because they don't treat them-and told us they would have to send us back to MD anderson to do anything to it...so even if those multiple tests ordered would have pointed to the denver cath-they would have to transfer marcus to MD Anderson and they said that wouldn't happen to at least monday....after much discussion with nurses and med. oncologist on call-we made a decision to check out of the hospital-AMA-against medical advice and go to MD Anderson on our own....but first Marcus wanted to go home to his Mom and Dad's for Christmas, enjoy the day with our girls, his brothers and nieces and nephews....so that is what we did! I told him I was behind him completely in whatever decision he made...I saw how 3 days in the hospital had him feeling and I didn't want him to feel that way any longer...
Well, he felt pretty rough all Christmas day-the antibiotics pumped into him over the past 3 days were taking a toll on him-he had hardly ate anything the whole time and he just felt bad-but he held on and was able to sit in his dad's recliner and open gifts and visit, and even ate some food! PRAISE THE LORD! After a long day, he was finally able to shower and go to bed in a real bed-NOT A HOSPITAL BED-and relax....and he did....around midnight his fever did go up to 100.4, but he took some tylenol and went to sleep. and he slept until noon!!! Had the best rest he has had in 3 days! All day we just sat around and relaxed and he has felt pretty good. Fever has stayed around 99 all day, but he has felt ok, so that is all I can ask for. Whenever he decides what he wants to do-I am ready to do it...but he has decided to wait until monday morning and see if they have results back from the small amount of fluid that we were able to get into the tube from his denver cath 12-24-they sent that to the lab to see if it showed sign of infection but said it would take 2-3 days to get results...before he starts the second round of chemo, or goes to MD Anderson....he just really doesn't want to get stuck in the hospital-but knows he has to do something if his fever keeps spiking...
So thank God for my mother and father-in-law who have let us and our girls just do as we please today-we have rested, stuffed our faces, played games with the girls-and just relaxed...the girls actually stayed in their PJs all day!! We needed this SO much-we are truly blessed.
As I close this post I just want to ask for prayers for peace......my paw paw will passed away this morning..he has not been in good health and was 81 years old..and honestly he has not been the same since my maw maw passed away in 2001...I know he is no longer in pain and is free from the troubles of this world..I just pray he is in Heaven relaxing and having a big cup of coffee with my maw maw.
So thank you Lord for letting us have a Merry Christmas after all...we know you have a plan for us and we trust in You completely. The best gift we could ever ask for has already been given-your precious son, Jesus Christ...there is no other gift we need. THANK YOU LORD!
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