melanoma wife: ok, so even physician assistants make mistakes ;)

LEARN THE ABCDEF'S OF MELANOMA!!! EARLY DETECTION IS THE KEY!

Friday, February 19, 2010

ok, so even physician assistants make mistakes ;)

Don't you just love it when the physician assistant hands you a consent form for your upcoming clinical trial-and you research it, spread the word, get ready...and then get a phone call telling you he gave you the wrong paperwork ?!?!??! That is enough to stress me out for the next year!!! And that is what happenned! Marcus just got a call from MDA telling him he had the wrong paperwork-the actual trial he will be partcipating in is RO4929097 and it is a Gamma Secretase Inhibitor trial... so, I just wanted to quickly let you all know the correct name of his trial and we are praying we won't have any other errors when his medicine gets dispensed ;)

2 comments:

Anonymous said...: Keep up the fight, you are true warrior family :) it might seem like the hill is steep and keeps getting harder but the time will come when life will be back to a normal pace ...
will be praying for you :); February 21, 2010 at 5:53 PM
Mindy Stanley Anderson said...: whoever posted this comment, THANK YOU SO MUCH!! yes the hill does seem steep and these past few weeks have been tough-but we are one strong family and trust that God will get us through this season. thanks so much for your prayers and support!

mindy xoxo; February 23, 2010 at 11:37 AM

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how it all began-the "mole" story

well, just for those that don't already know-here is how this journey began. it all started with a little mole that marcus had since birth, on his thumb. in early 2007, i noticed that it had started to change-it was bigger and part of it was black and part was brown-i really didn't know much about melanoma, but i remember the way it looked-it reminded me of the mole on my niece's foot that a dr. removed when she was small, because he said if they didn't remove it, most definitely it would turn cancerous when she went through puberty. ANYWAYS, so i began nagging sweet hubby to go get it looked at. of course, he kept saying, "it's no big deal, i have had this mole since i was born-it's fine". so life went on.

well, hubby works with his hands since he is a machinist, and he bumped the mole-it bled-it grew bigger. a few months later, he bumped it at work AGAIN-it bled-it grew bigger-and now it actually started to bother him. it was sensitive.

one day out of the blue he called me from work-and asked me to make an appt. for him to go to the dr. to get the mole removed. THANK GOD! so of course i got right on that phone and made him an appt. first call to his current primary care phys. was a joke-they couldn't see him for at least another week or so because they were only seeing flu patients on fridays (the only weekday hubby has off) and didn't feel his mole was anything to fret about! well, i sure thought it was and called my primary care phys.-she had no problem seeing him on friday like he wanted!

sure enough, once he saw her, she didn't like the looks of the mole and immediately sent him to a dermatologist. and only by God's hand guiding-did she decide to NOT wait 3-6 months for a dermatolgist in beaumont to get an opening-but she sent him to a dr. in mid-county-that she didn't even know-she had just received his business card in the mail the week before-and decided since he could work hubby in so quickly-that he was the ONE!!! THANK YOU GOD!!!!

well, the next week came-marcus went to the dermatologist-wanting to get that mole removed!! to his surprise-the dr. wanted to biopsy it-he didn't like the looks of it either. (do you see a pattern here? sweet wife was on to something !) he talked the med. asst. lady into cutting as much of the mole off as she could-and she did-we later found out that she removed all the cancer from the thumb with that biopsy! one week later, we were told that the biopsy showed malignant melanoma and they sent us straight to MD Anderson in Houston!!!! talk about scary!

the medical oncologist explained that the type of cancer he had was called superficial spreading melanoma-and it liked to spread to the lymph nodes-so he suggested a partial amputation of the thumb-to make sure he got all the cancer-and a sentinal node biopsy-to see which, if any lymph nodes had cancer- Marcus wanted to save his thumb-so that is what they did. the dr. removed the margin around what was left of the mole-and took a skin graft from the side of his stomach to rebuild the thumb. this all healed very well.

they did the sentinal node biopsy and found that there was one lymph node under his arm that had cancer-it ended up having 20 cells in it-so they suggested he remove all the lypmh nodes from under his arm. he did this and all the other nodes came back CANCER FREE!!!!!!!

now they also suggested he do 4 weeks of high dose interferon to kill any cells that may have gotten loose from that node-to prevent this monster from coming back. they also want him to do 11 months of the interferon shots-but we don't know how far he will go with those. all depends on how sick they make him-and if they are anything like the high dose-he may only go 2 weeks.**MARCUS COMPLETED 4 WEEKS OF HIGH DOSE INTERFERON AND DID THE SHOTS 3/WEEK FOR ABOUT 3 MONTHS BEFORE HE STOPPED**

we later discovered that once the cancer has spread to lymph nodes closest to the mole, it is considered stage III-no one ever really told us this-we had to learn on our own.***UPDATE-8-31-09 LUNG METS WERE DISCOVERED SO MARCUS WAS UPGRADED TO STAGE IV***
***AFTER IL-2 AND SEVERAL CHEMO COMBOS, MARCUS LOST HIS BATTLE 4-1-2010. MELANOMA SUCKS!!!***

this is a brief outline of the "mole" story-hope it was easy to follow-and hope it makes everyone think twice about their moles!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! PLEASE LEARN ABOUT MELANOMA-IT IS NOT "JUST" SKIN CANCER!!!!!

melanoma wife

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Friday, February 19, 2010

ok, so even physician assistants make mistakes ;)

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